Carole, Australia

I was diagnosed with OT a few months ago & was relieved to know that I was not alone. I want to thank your other visitors to this page that have helped me to control my shakes with medication.

I believe I have had OT for 3 years, at the time I was suffering  stress as I had 3 tragic deaths  within my family within 6 months. It was then I discovered I was shaking badly I couldn't stand to do my hair . My legs would go from under me.  Simple tasks like washing up, ironing , hand washing all became impossible over a period of time.

After 18 months I went to my Dr. they prescribed  Vallum. I took myself off that as I didn't think that was the answer. I went back to her & she sent me to a neurologist, he was no help at all told me to live with it as no one  knew what it was (not very helpful at all). I played a lot of sports particularly golf & found I couldn't even stand over the ball to hit it without shaking. So I gave golf away for a period. I became very house bound as every time I tried to do banking, PO, Shopping etc. I would go into a panic attack & would to be physically sick, shake uncontrollably  but when I  could sit down I would feel fine. I then went to another GP as I was not happy, he sent me to another Neurologist who much to my surprise, diagnosed me straight away & said he didn't know a lot about it but gave me your page to search. I couldn't believe what I read it was as though I had written it myself, it was describing my condition exactly & it was so good to finally have a name for it. I was prescribed Clonazepam & I found it too sedative.

I  searched your visitors page & found one of your visitors had used Neurontin (with no side affects )which I must say is working for me.  I feel I am in control of my life again to a degree. I am back playing golf & shopping is under control .The cost of the Tablets are very expensive which is a problem but the change in my life is worth it.

I would be happy to hear from anyone who wished to talk to me I would like to know if other people have any idea what triggers this condition , I believe mine was caused from my tragedies as I was fine before that.

Carole podge@aapt.net.au