| I was thrilled when my daughter found your site while looking for information on Orthostatic Tremors. I has lost a complete description of the O.T. she had found in our local library. I found your OT resources very interesting and carbon copy of my condition. I'd like to share my story with you.
My experience w/ OT Diagnoses fall of 1996 - fall of 1997: Fall of 1996 started to notice light tremors, constantly changing my stance while standing. Using stools and chairs, or backing against walls to support myself. Went to my MD Dr. V.H. He first thought it was Parkinson's. He put me on Klonopin with no results. Jan 1997 he referred me to Dr. M.L. a Toxologist. Many different tests, I can't recall. Referred me to Neurology dept at local state University Hospital, Dr. E.P. After his initial examination he ordered the following: EMG, MRI and over a dozen blood tests to see if there was any relation to chemicals I had worked with in the last forty plus years. All tests were normal and could find no relation to chemicals. The following is a portion of neurologist Dr. E.P.'s final analysis... several medications have been tried to include; Mysoline, Sinemet and Sinemet CR and previously he had a trial with Klonopin by MD Dr. V.H. Unfortunately all of these medications have failed to produce any significant improvement. Chuck as suffered significant side effects. The trial with the standard form of Sinemet resulted in severe dizziness, sympotomatology that suggests Orthostatic Hypotension (dizziness, vertigo) and GI disturbances. On 7/97 I switched him to Simemet CR 50/200, and unfortunately this medication failed to improve his condition... He has failed on medications used for OT such as: Klonopin, Sinemet, Mysoline and the controlled released preparation of Sinemet. I had a chance to discuss Chuck with my colleagues at Columbia Presbyterian different alternative. Suggestions were new medications Permax & Requip... Gloria I could go on forever, but this is probably enough for now. Your web site is my first and only contact with another person w/ OT. Thanks for your insight and information. I read it several times!! Too bad we have to correspond under these conditions. I have learned many ways to hide OT - many the same as you describe. My doctor says "Posturing" is the keyword! Chuck, |