Daphne, UK

In 1983 I found that when I got nervous my legs would start to 'tremor'. I put up with this for about 10 years. I was absolutely fine when sitting down - so I didn't do anything about it. Then I noticed that I found it difficult to stand and write a 'cheque' or sign a 'credit card slip' so I decided to see my GP. The first GP I saw just told me to wear 'flat shoes'!! This didn't work so she told me to try 'support tights'. This didn't work either. Eventually I decided to see another GP who said he didn't know what it was and decided to send me to see a neurologist. I went to the Thomas Rowney Clinic at the 'Radcliffe Infirmary' in Oxford and saw a Dr Silburn.(this was in 1995).

As soon as I told him my problem he diagnosed it as OT right away. He had seen this before. I asked if it could be cured and he told me that it couldn't be cured but it could be controlled. He prescribed clonazepam. I started taking one .5mg tablet a day and it really did work wonders - the tremor went and I had no 'side effects' what so ever. I couldn't believe that I could actually stand still without my legs starting to tremor.

I was asked if I would mind going on a 'Research' trial and I was happy to do so. I went to see Dr Mills - the research Dr on three different occasions - I was wired up to a machine and asked to stand etc. which told him what strength the tremor was. Unfortunately I was not told the results although they were obviously sent to my GP. The research dates were:- June 1995, May 1996 and October 1996. After this I was told that the research had finished due to lack of funds!! I continued to see Dr Davis (Neurologist) once a year up to the time of his retirement in December 2005.

During this time I found that as time went by I needed to up the dose of Clonazepam and at the moment I am now taking four .5mg tablets in the mornings but I am sad to say that they are not working as well as they did at the start of treatment. I found your website very interesting and you are welcome to add this to your website if you think it will be of any help.  

PS. I am now only seeing my GP as there doesn't seem to be another Specialist that deals with OT in the Oxfordshire Area. (Unless of course your readers have any information which I would be glad to receive)  

Daphne UK