| It was like coming home to find your wonderful site and the input from fellow sufferers. I couldn't believe it, I just kept reading stories and nodding in agreement. I have been misdiagnosed with Parkinson's, told I must have spinal surgery immediately, treated with antidepressants and outright dismissed by more doctors than I care to think of. Finally one of six neurologists I have seen (most of whom recommended spinal surgery) told me I had a "standing tremor" which would likely not put me in a wheelchair and there was nothing to be done. This was 15 years ago and what started as a slight tremor when giving a speech progressed to not being able to stand in one place for 30 seconds, let alone bend over at the waist (flushed face, wet hair, shaking, clenched toes, pain). Looking up "tremors" on the Internet I stumbled on your website. Everyone here has the same symptoms and I am not the only one in the world and I am not imagining it. Whew! I'm 76 but of strong constitution. Walking is easy for me and I have adapted as best I can to standing problems. I outright tell people I have a "balance" problem and I have to lean on a wall. I don't take any medication although some neurologists put me on Klonopin and then on Sinemet, neither of which did a thing.I have withdrawn a lot into myself and just find it easier to stay home or plan sitting activities. Others don't understand because I look very healthy. Here is a weird story. Last summer, I was on a yacht in the Mediterranean and my daughter and I were sitting on the steps that open up from the hull at a 45 degree angle. We had our feet in the (cold) water and as other boats would pass in front of ours we would be momentarily submerged by their wakes I would say waist-high. Sort of like being dipped in cold water. We stayed there about 20 minutes, then swan off and around to the side to climb up side ladder. When we got on the deck, I was amazed to find I could stand unaided, run, and my balance was temporarily restored, this lasted for an hour or more. Don't know if it was immersion in cold water or the fact that circulation was stimulated. It was a wonderful feeling, one that gave me hope that there is a cure if it could only be found. In the meantime, I am going to an integrative doctor. My approach is three-pronged,detox, nutrition and Bowen. The Bowen Technique has been spectacular for me, almost no more arthritis pain and can move easily, can stand for up to 3 minutes, with some discomfort. I no longer have depression. I think my OT started after a bout of shingles, but not clear. I had to quit work five years ago because it was too stressful physically and mentally. Also, I had a kidney stone and I think the anesthetic made the tremor worse for a long time after the operation. I have a silicon chin implant (1990).I am A positive blood type. Have had numerous auto accidents and broke my coccyx in a fall. Have flat feet and pronated ankles. Again, thank, thank you, thank you. Noni , Fl |