I have had OT symptoms for a little over 10 years; they first appeared instaneously on a flight from Europe. I was under very extreme business stress at the time - without a doubt, the worst of my life. Eventually I was referred to the Benjamin Franklin Hospital in Berlin, Germany and after approximately a week of intensive investigation, they in turn referred me to the neurological hospital across town.
Standing was my only problem. (Prof. Lempert of the neurological hospital had apparently hear of the disease while studying at Great Ormond Street Hospital in London). After exhausting all conventional and alternative medicines and healers I ended up with what can only be described as a "witch doctor" some years later. He really seemed spot on in his diagnosis and made me go back to the 6 months prior to manifestation of the symptoms. In confirmation of his diagnosis, when I go on holiday and relax the symptoms certainly do ameliorate and, conversely, when I get angry or lose my temper at work the symptoms become pretty severe. I have had all the conventional medicines mentioned on the web-site (as well as medicines such as Stemitil and Sturgeron), but none of them have worked. I reached a low point where I was taking some 16 pills a day and managed to ding my car 5 times in a week. I then flushed the whole lot down the toilet and set about improving my lifestyle, lost 13kg and now actively exercise. This makes life tolerable. In addition, OT required me having to give up a senior position in business and I now run my own factory.
After I read your " living with OT", you described my life and reactions perfectly, and once again I believed in my own sanity and it made it much easier to get on with the joys of daily living - obviously omitting things I can not do. (Hate cocktail parties). I am 62 years of age, have 6 wonderful children (age 37 down to twins who turned 4 on Saturday last) and a loving wife to help me.
- Terry R, South Africa