SHIRLEY, California

I was finally diagnosed with Orthostatic Tremors yesterday and I had been treated by a neurologist for everything but.... He put me on Paxil,Prozac, etc, etc, etc and nothing worked. Finally I told my own doctor that this was ridiculous and I do not have Anxiety Attacks or Panic Attacks and I want something else done so I quit going to that neurologist and my own doctor put me on Neurontin, which seemed to help the nerves but I don't think it did much for the tremors. Then he sent me to the University of San Francisco and the neurologist there did an hour and a half test with me and sent me home.


On the 1st of April I went back again to San Fran for an EMG diagnostic test and when they connected my legs up to this machine, the needle jumped off the screen. I then came home and yesterday my doctor told me just what I have. I went in to the web site yesterday afternoon to find out anything I could about it and was amazed that everything that this site said, I have those very same symptoms.


Honestly, reading it was just like reading about ME!!!!! I am open to any information I can get at this time. My own doctor is simply baffled as he said he had never even heard of this disease. My doctor is now sending me for a series of tests to see if I need Vitamin B-12 shots. He isn't sure this will help but is still trying to find something to help me with all of this.


Shirley from California